European Collaboration on Dementia
The aim of the project was to develop a European network of all the players active in the area of dementia to jointly develop consensual indicators and to develop an ongoing dialogue between these actors to identify ways of developing synergies and a closer collaboration on a European level.
For the development of these guidelines and indicators, the network brought together a number of established pan-European organisations, European projects and informal collaborations, such as the Cochrane Dementia and Cognitive Improvement Group, the European Alzheimer's Disease Consortium, the European Association of Geriatric Psychiatry, the dementia panel of the European Federation of Neurological Societies, the INTERDEM (Early detection and timely intervention in dementia)group, the International Association of Gerontology (European region) and the North Sea Dementia Research Group. Recognising the global dimension of dementia and the need to extend its collaborative efforts, Alzheimer Europe will furthermore actively involve Alzheimer's disease International.
More specifically, the EuroCoDe project focused on 6 priority areas:
1. Consensual Prevalence rates
The project gathered existing epidemiological studies and analysed the respective merits and shortcomings of the individual studies. Based on the report on these studies, consensual European prevalence rates were developed that will hopefully be used as a “golden standard” within the respective organisations.
2. Guidelines on diagnosis and treatment
The aim of the project was to identify already existing guidelines and establish a comparative report on commonalities and differences. This report was then used to develop consensual guidelines acceptable to the various networks and project partners.
3. Guidelines on non-pharmacological interventions
The project identified studies on the effects and usefulness of various interventions and present them in a comparative report highlighting the strengths and weaknesses of the respective studies and the studied interventions. Based on the findings, the project elaborated consensual guidelines and quality criteria for non-pharmacological interventions.
4. Risk factors and risk reduction and prevention strategies
As part of the project, existing studies on risk factors for Alzheimer's disease and other forms of dementia were collected and presented in a comparative report highlighting promising venues for the development of prevention strategies. Particular attention was given to developing recommendations for national Alzheimer association to use in conjunction with campaigns promoting a “healthy brain lifestyle”
5. Socio-economic cost of Alzheimer’s disease
The project collected existing studies and presented its findings in a comparative report. Furthermore, taking into account economic differences between the various Member States of the European Union, the project resulted in the publication of a report on the socio-economic impact of dementia in Europe.
6. Inventory of social support systems
The project partners carried out a survey on the existing level of support available for people with dementia and their carers in the 25 Member States of the European Union and the accession countries. Such a survey looked at the different treatment reimbursement systems, the level of carers' allowances and benefits, care insurance systems, employment related benefits (such as carers’ leave, flexible working time, pension systems) and other benefits. The findings were presented in a comparative report and discussed with the other network and project partners in order to identify best practices.
Last Updated: Friday 14 November 2014