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2014: Ethical dilemmas faced by carers and people with dementia

1. Crutch S and McCulloch Y (2012). What is dementia?s.l. : Alzheimer's Society. Accessed online on 7 November 2012 at:

2. World Health Organization. (2012). Dementia: a public health priority.s.l. : World Health Organization

3. Armson R (2011). Growing wings on the way: systems thinking for messy situations.s.l. : Triarchy Press Ltd.

4. Velasquez M et al. (2010). What is ethics?s.l. : Santa Clara University (revised version of original article of 1987 in "issues in ethics").

5. Nuffield Council on Bioethics. (2009). Dementia: ethical issues.s.l. : Nuffield Council on Bioethics.

6. Martin MW (1995). Everyday morality: an introduction to applied ethics, 2nd Edition.Belmont : Wadsworth Publishing Co.

7. Longneaux JM (2014). L'éthique à la recherche bien-être, l'engagement de chacun.Speech at the colloque "Maladie d'Alzheimer: L'éthique à la recherche du bien-'etre".Huy, Belgium, 24 April 2014 .

8. Post SG (1995).The moral challenge of Alzheimer's disease: ethical issues from diagnosing to dying, 2nd edition.John Hopkins University Press.

9. Beauchamp J and Childress J (2009). Principles of biomedical ethics, 6th edition.Oxford University Press.

10. Hughes JC and Baldwin C  (2006). Ethical issues in dementia care.Jessica Kingsley Publishers,.

11. Gastmans C (2013) Dignity-enhancing nursing care: A foundational ethical framework.Nursing Ethics, 2, 42, pp. 142-9.

12. Goodin R (1985). Protecting the vulnerable: a reanalysis of our social responsibilities.The University of Chicago Press,.

13. Agich GJ (2003). Dependence and autonomy in old age.Cambridge Univesity Press.

14. Graham JE and Bassett R (2006). Reciprocal relations: the recognition and co-construction of caring wtih Alzheimer's disease.Journal Aging Stud.20, pp. 335-49.

15. Vernooij-Dassen M, Leatherman S and Olde Rikkert M (2011). Quality of care in frail older people: the fragile balance between receiving and giving.BMJ.342, pp. 1062-3.

16. Keady J and Nolan M The dynamics of dementia: working together, working separately, or working alone?s.l. :

17. World Health Organisation (2014). WHO definition of palliative care.

18. Van der Steen J et al. (2014). White paper defining palliative care in older people wtih dementia: A Delphi study and recommendations from the European Association for Palliative Care.Palliative Medicine.28, pp. 197-209.

19. Alzheimer's Society (2012). My life until the end: dying well with dementia.Alzheimer's Society (England).

20. Alzheimer Europe.Various reports on ethical issues linked to dementai and dementia care.

21. Alzheimer Scotland (2012). Dementia: making decisions.Nuffield Foundation,.

22. Baldwin C, Hope T, Hughes J, Jacoby R and Ziebland S (2005).Making difficult decisions: the experience of caring for someone with dementia. Alzheimer’s Society

23. Mahieu L and Gastmans C (2012) Sexuality in institutionalized elderly persons: a systematic review of argument-based ethics literature.International Psychogeriatrics24:346-357.

24. Mahieu L, Anckaert L and Gastmans C (2014a) Eternal sunshine of the spotless mind? An anthropological-ethical framework for sexuality in dementia care.Medicine, Health Care and Philosophy17:377-387.

25. Mahieu L, Anckaert L and Gastmans C (2014b) Intimacy and sexuality in institutionalized dementia care: clinical-ethical considerations.Health Care Analysis(in press).



Last Updated: Monday 08 February 2016