2013: The ethical issues linked to the perceptions and portrayal of dementia and people with dementia
Agich, G. J. (2003). Dependence and autonomy in old age: an ethical framework for long-term care. Cambridge University Press
Aita, M. and Richer, M-C (2005). Essentials of research ethics for healthcare professionals.Nursing and Health Sciences, 7, 119-125
ALCOVE (2013). ALCOVE synthesis report. The European Joint Action on Dementia. ALCOVE HAS Coord. Team
Alzheimer Europe (2001). EPOCH: equality in the provision of care at home, Alzheimer Europe
Alzheimer Europe (2002). Who cares? The state of dementia care in Europe.Alzheimer Europe
Alzheimer Europe (2008). Alzheimer Europe electronic newsletter. September. Alzheimer Europe
Alzheimer Europe (2008). Dementia in Europe Magazine.June.Alzheimer Europe .
Alzheimer Europe (2009). Dementia in Europe Magazine: A look at how dementia is portrayed in literature and arts. May.Alzheimer Europe .
Alzheimer Europe (2009),Prevalence of dementia. Information provided by Emma Reynish and colleagues in the framework of the EuroCoDe project. Available at: http://www.alzheimer-europe.org/ /Research/European-Collaboration-on-Dementia/Prevalence-of-dementia
Alzheimer Europe (2010). Dementia in Europe Yearbook: Legal capacity and proxy decision making.Alz. Europe
Alzheimer Europe (2011). The ethics of dementia research.Alzheimer Europe
Alzheimer Europe (2012). The ethical issues linked to restrictions of freedom of people with dementia.Alzheimer Europe
Alzheimer's Society (2008). Dementia: out of the shadows.Alzheimer's Society. [& related literature review]
Alzheimer’s Society (2011). Coronation street tackles dementia and carer guilt. Accessed online on 18 July 2013 at: http://www.alzheimers.org.uk/site/scripts/news_article.php?newsID=1081
Alzheimer's Society (2012). Sharing the Alzheimer's disease experience.Living with Dementia Magazine, 1-4.
Alzheimer’s Society (2013). Low expectations: Attitudes on choice, care and community for people with dementia in care homes.Alzheimer’s Society.
American Psychiatric Association (2012). DSM-5: The future of psychiatric diagnosis. Accessed online on 9 November 2012 at: http://www.dsm5.org/Pages/Default.aspx
American Psychiatric Association (2013). Diagnostic and Statistical Manual of Mental Disorders, Fifth edition. Arlington, VA: American Psychiatric Association.
Anderson, J. (2012). Communication and dementia: 10 simple tips. Acc. on 18/7/13: http://cpf.cleanprint.net
Angermeyer, M. C., & Matschinger, H. (2003). Public beliefs about schizophrenia and depression: similarities and differences.Soc Psychiatry Psychiatr Epidemiol,38, 526-34.
Angermeyer, M. C., & Matschinger, H. (2004). The stereotype of schizophrenia and its impact on discrimination against people with schizophrenia: results from a representative survey in Germany. Schiz Bull, 30, 4, 1049-61.
Angermeyer, M. C., & Matschinger, H. (2005). Labeling - stereotype - discrimination: An investigation of the stigma process. Soc Psychiatry Psychiatr Epidemiol, 40, 391-5.
Aquilina, C., & Hughes, J. C. (2006). The return of the living dead: agency lost and found? In J. C. Hughes, S. L. Louw, & S. R. Post,Dementia: mind, meaning and the person.Oxford University Press, 143-61.
Audit Commission. (2000). Forget me not: Mental health services for older people. Audit Commission.
Ayalon, L., & Areán, P. A. (2004). Knowledge of Alzheimer's disease in four ethnic groups of older adults.Int J Geriatr Psychiat,19, 51-7.
Baldwin, C., & Capstick, A. (2007).Tom Kitwood on dementia: a reader and critical commentary.Open Un. Press.
Ballenger, J. F. (2006).Self, senility, and Alzheimer’s disease in modern America: a history. John Hopkins
Ballenger, J. (2008). Reframing dementia: the policy implications of changing concepts. In M. Downs & B. Bowers,Excellence in dementia care: research in practice, pp. 492-508, Open University Press
Ballenger, J. (2010). DSM-V: Continuing the confusion about aging, Alzheimer’s and dementia. Accessed online on 20 August 2013 at: http://historyofpsychiatry.com
Bakker, C., de Vugt, M.E., van Vliet, D., Verhey, F.R., Pijnenburg, Y.A., Vernooij-Dassen, M.J., Koopmans, R.T. (20131). The Use of Formal and Informal Care in Early Onset Dementia: Results from the NeedYD Study.Am J Geriatr Psychiatry.21, 1, 7-45.
Bakker, .C, de Vugt, M.E., van Vliet, D., Verhey, F.R., Pijnenburg, Y.A., Vernooij-Dassen, M.J., Koopmans, R.T.. (2013b). Predictors of the Time to Institutionalization in Young- Versus Late-Onset Dementia: Results from the Needs in Young Onset Dementia (NeedYD) Study.J Am Med Dir Assoc.14, 4, 248-53.
Bamford, C., Lamont, S., Eccles, M., Robinson, L., May, C., & Bond, J. (2004). Disclosing a diagnosis of dementia: a systematic review.Int J Geriatr Psychiat, 19, 151-69.
Banerjee, S. (2009).The use of antipsychotic medication for people with dementia: Time for action.The Institute of Psychiatry, King's College London.
Bartlam, B., Lally, F. & Crome, P. (2010).The PREDICT study: increasing the participation of the elderly in clinical trials. The opinions of patients and carers. Lay report. Keele University
Basting, A.D. (2009).Forget memory. The John Hopkins University Press
Batsch, N. L., Mittelman, M. S. & Alzheimer’s Disease International (2012).World Alzheimer Report 2012: Overcoming the stigma of dementia.Alzheimer's Disease International.
Behuniak, S. B. (2011).The living dead? The construction of people with Alzheimer’s disease as zombies.Ageing & Society, 31,70-92.
Ben-Zeev, D., Young, .A. & Corrigan, P.W. (2010). DSM-V and the stigma of mental illness.J Ment Health, 19,4, 318-27.
Berchtold, N. C., & Cotman, C. W. (1998). Evolution in the conceptualization of dementia and Alzheimer's disease in the Greco-Roman period to the 1960s.Neurobiology of Aging, 19, 3, 173-89.
Bishop, G. D. (1991). Lay disease representations and responses to victims of disease.Basic and Appl Soc Psychol, 12, 1, 115-32.
Blay, S. L., & Peluso, É. T. (2010). Public stigma: The community's tolerance of Alzheimer Disease.Am J Geriatr Psychiat, 18,2, 163-71.
Blendon, R.J., Benson, J.M., Wikler, E.M., Weldon, K.J., Georges, J., Baumgart, M. & Kallmyer, B.A. (2012). The impact of experience with a family member with Alzheimer’s disease on views about the disease across five countries. International Journal of Alzheimer’s Disease.Available online at: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3446668/pdf/IJAD2012-903645.pdf
Blum, N. S. (1991). The management of stigma by Alzheimer's family caregivers.J Contemp Ethnog, 20, 263-84.
Boden, C. (1998).Who will I be when I die?Sydney, NSW, Australia: Harper Collins.
Boise, L., Camicioli, R., Morgan, D. L., Rose, J. H., & Congleton, L. (1999). Diagnosing dementia: Perspectives of primary care physicians.The Gerontologist, 39,4, 457-64.
Bond, J., Stave, C. Stanga, A. et al. (2005). Inequalities in dementia care across Europe: key findings of the Facing Dementia Survey.Int J Clin Pract, 59 (suppl 146), 8-14.
Boustani, M., Perkins, A. J., Monahan, P., Fox, C., Watson, L., Hopkins, J., et al. (2008). Measuring primary care patients' attitudes about dementia screening.Int J Geriatr Psychiat, 23, 812-20.
Braun, K. L., & Browne, C. V. (1998). Perceptions of dementia, caregiving, and help seeking among Asian and Pacific Islander Americans.Health and Social Work, 23, 262-74.
Brodaty, H., Howarth, G. C., Mant, A., & Kurrle, S. E. (1994, January 3). General practice and dementia.The Med J Australia, 160, 10-14.
Brotman, A.W., Stern, T.A. & Herzog, D.B. (1984). Emotional reactions of house officers to patietns with anorexia nervosa, diabetes and obesity.Int J Eat Disord, 3,4, 71-7.
Bryden, C. (2004).Transcript of speech for the ADI conference held in Kyoto.
Buchanan, A. (1988). Advance directives and the personal identity problem.Phil and Pub Affairs, 17, 277-302.
Buron, B. (2008). Levels of personhood: a model for dementia care.Ger Nursing, 29, 324-32.
Burstow, P. (2011).Six out of ten people with dementia go undiagnosed – £2 million campaign launched to tackle dementia. Department of Health, Press release - https://www.gov.uk/government/news/six-out-of-ten-people-with-dementia-go-undiagnosed-2-million-campaign-launched-to-tackle-dementia
Butler, R. (1975). Why survive? Being old in America. Harper & Row
Cahill, S. et al. (2004). I” know where this is going and I know it won’t go back”: hearing the individual’s voice in dementia quality of life assessments.Dementia, 3,313-30.
Cahill, S., Clark, M., O'Connell, H., Lawlor, B., Coen, R. F., & Walsh, C. (2008). The attitudes and practices of general practitioners regarding dementia diagnosis in Ireland.Int J Geriatr Psychiat, 23, 663-9.
Cameron, C. (2007).Models of disability. Unpublished article
Caporael, L. R., Lucaszewski, M. P., & Culbertson, G. H. (1983). Secondary baby talk: Judgments by institutionalized elderly and their caregivers.J Person and Soc Psychol, 44, 746-54.
Carels, R. A., Domoff, S. E., et al. (2013). Examining perceived stereotype threat among overweight/obese adutls using a multi-threat framework.Obesity Facts: The Eur J Obes, 6, 3,open online version
Cayton, H. (2001). From childhood to childhood: Autonomy, dignity and dependence through the ages of life. Presentation at the 15th ADI conference in Chirstchurch, New Zealand
Chan, P. A., & Chan, T. (2008). The impact of discrimination against older people with dementia and its impact on student nurses professional socialisation.Nurse Education in Practice.
Chapple, A., Ziebland, S. & McPherson, A. (2004). Stigma, shame, and blame experienced by patients with lung cancer: a qualitative study.BMJ Online First, 1-5.
Chaston, D. (2010). Younger adults with dementia. A strategy to promote awareness and transform perceptions.Contemp Nursing, 34,2, 221-9.
Cheston, R. & Bender, M. (1999).Understanding dementia: the man with the worried eyes. Jessica Kingsley
Chung, K.F. & Chan, J.H. (2004). Can a less pejorative Chinese translation for schizophrenia reduce stigma? A study of adolescents’ attitudes toward people with schizophrenia.Psychiat and Clin Neurosciences, 58, 507-15.
Clare, L. (2002). We’ll fight it as long as we can: coping with the onset of Alzheimer’s disease.Aging & Ment Health, 6,2, 139-48.
Clare, L. Rowlands, J. Bruce, E. Surr, C. & Downs, M. (2008). ‘I don't do like I used to do’: A grounded theory approach to conceptualising awareness in people with moderate to severe dementia living in long-term care.Social Science andMedicine, 66,11,2366-77.
Clarke, J. (2005). Adverse factors and the mental health of older people: implications for social policy and professional practice.J Psychiat and Ment Health Nurs, 12, 290-6.
Clarke, J.N. (2006). The case of the missing person: Alzheimer’s disease in mass pring magazines 1991 – 2001.Health Communication, 19,3, 269-76.
Cohen, M., Werner, P., & Azaiza, F. (2009). Emotional reactions of Arab lay persons to a person with Alzheimer's disease.Aging & Ment Health, 13, 1, 31-7.
Cohen-Mansfield, J. and billig, N. (1986). Agitated behaviors in the elderly. I. A conceptual review.J Am Geriatr Soc,34, 10, 711-21.
Connell, C., Scott Roberts, J. & McLaughlin, S. (2007). Public opions about Alzheimer disease among blacks, hispanics, and white: results from a national survey.Alz Dis & Assoc Disord, 21,3, 232-40-
Conde-Sala, J. L., Garre-Olmo, J., Turro-Garriga, O., Lopez-Pousa, S., & Vilalta-Franch, J. (2009). Factors related to perceived quality of life in patients with Alzheimer's disease: the patient's perception compared with that of caregivers.Int J Geriatr Psychiat, 24,585-94.
Cooley, D. R. (2007). A Kantian moral duty fo the soon-to-be demented to commit suicide.Am J Bioethics,7,6, 37-44.
Corner, L., & Bond, J. (2004). Being at risk of dementia: fears and anxieties of older adults.J of Aging Stud, 18, 143-55.
Cornforth, T. (2009). Ovarian cancer: why ovarian cancer is called “the silent killer”. Women’s Health, accessed online on 4 July 2013 at: http://womenshealth.about.com
Corrigan, P. W., Kerr, A., & Knudsen, L. (2005). The stigma of mental illness: Explanatory models and methods for change.Applied and Prevent Psychol,11 , 179-90.
Corrigan, P. W., Markowitz, F. E., Watson, A., Rowan, D., & Kubiak, M. A. (2003). An attribution model of public discrimination toward persons with mental illness.J Health and Socl Behav,44, 162-79.
Corrigan, P. W., Larson, J. E., & Kuwabara, S. A. (2007). Mental illness stigma and the fundamental components of supported employment.Rehab Psychol, 52, 4, 451-7.
Cotrell, V. & Hooker, K. (2005). Possible selves of individuals with Alzheimer’s disease.Psychol and Aging,20, 2, 285-94.
Cotrell, V. & Schulz, R. (1993). The perspective of the person with Alzheimer’s disease: a neglected dimension of dementia research.The Gerontologist,33,205-11.
Coudin, G. and Alexopoulus, A. (2010). Help me! I’m old! How negative aging stereotypes create dependency among older adults.Aging & Ment Health, 14,4, 516-23.
Crisafulli, M.A., Von Holle, A. & Bulik, C.M. (2008). Attitudes towards anorexia nervosa: The impact of framing on blame and stigma.Int J Eat Disord, 41,4, 333-9.
Crisp, J. (1999). Towards a partnership in maintaining personhood. In T. Adams, & C. L. Clarke,Dementia care: developing partnerships in practice(95-119). Bailliere Tindall.
Crisp, A. (2009).Changing minds (awareness raising leaflet). Changing Minds Campaign Managem. Committee
Cross, H. (2006). Interventions to adress the stigma associated wtih leprosy.Psy, Health & Med, 11,3, 367-373.
Crowther, R. E., Marshall, M., Bond, G. R., & Huxley, P. (2001). Helping people with severe mental illness to obtain work: systematic review.Brit Med Journal, 322,7280, 204-8.
Cutler, S. J., & Hodgson, L. G. (2001). Correlates of personal concerns about developing Alzheimer's disease among middle-aged persons.Amer J Alz Dis and other Dem, 16,335-343.
Cummings, J. L. (2007). Definitions and diagnostic criteria. In S. Gauthier,Clinical diagnosis and management of Alzheimer's disease: third edition(pp. 3-14). Informa Healthcare.
Cvencek, D., Meltzoff, A.N., & Greenwald, A.G. (2011).Child Development, 82,3, 766-79.
Davis, R. (1989).My journey into Alzheimer's disease.Bucks: Scripture Press.
Davis, F. (1961). Deviance disavowal. The management of strained interaction by the visibly handicapped,Social Problems,9, 121-32.
DeBaggio, T. (2002).Losing my mind: an intimate look at life with Alzheimer's.New York: Free Press.
DeBoer, M.E., Hertogh, C., Fröes, R-M., Riphagen, I., Jonker, C. & Eefsting, J.A. (2007). Suffering from dementia – the patient’s perspective: a review of the literature.Int Psychogeriat, 19,6, 1021-39.
Derouesné, C. (2008). Alzheimer and Alzheimer’s disease: the present enlightened by the past. An historical approach [article in French].Psychol Neuropsychiatr Vieil,6,2, 115-28.
Devlin, E., MacAskill, S., & Stead, M. (2007). "We're still the same people": developing a mass media campaign to raise awareness and challenge the stigma of dementia.Int J Nonprofit and Vol Sector Marketing, 12,47-58.
Dobbs, D., Eckert, K., Rubinstein, B. et al. (2008). An ethnographic study of stigma amd ageism in residential care or assisted living. The Gerontologist, 48,4, 517-25.
Doloksaribu, E. I. (2009). Pasung cases: is there a regulation or law of it?Stigma & Discrimination: Evidence for Action(p. 21). London: Institute for Psychiatry.
Douglas Harper (2012). Online Etymology Dictionary. http://www.etymonline.com
Downs, M., Clibbens, R., Rae, C., Cook, E., & Woods, R. (2002). What do general practitioners tell people with dementia and their families about the condition: a survey of experiences in Scotland.Dementia,1, 1, 47-58.
Downs, M., Clare, L., & Mackenzie, J. (2006). Understandings of dementia: explanatory models and their implications for the person with dementia and therapeutic effort. In J. C. Hughes, S. L. Louw, & S. R. Sabat,Dementia: mind, meaning and the person(S. 235-258). Oxford University Press.
Downs, M., Small, N. and Froggatt, K. (2006). Explanatory models of dementia: links to end-of-life care.Int J Pall Nur, 12,5, 209-13.
Doyle, C.J., Dunt, D.R., Pirkis, J., Day, S. & Wijesundara, B.S. (2012). Media reports on dementia: quality and type of messages in Australian media.Australasian J on Ageing, 31,2, 96-101.
Droës, R.M. et al. (2006). Quality of life in dementia in perspective: an explorative study of variations in opinions among people with dementai and their professional caregivers, an in literature.Dementia, 5, 533-58.
Dröes, R, van der Roest H, van Mierlo L, Meiland F. (2011). Memory problems in dementia: adaptation and coping strategies and psychosocial treatments.Expert Rev. Neurother,11,12, 1769-82.
Dunham, C. C., & Cannon, J. H. (2008). "They're still in control enough to be in control": Paradox of power in dementia caregiving.J of Aging Stud, 22,45-53.
Dupuis, S.L., Wiersma, E. & Loiselle, L. (2012). Pathologizing behavior: meaning of behaviors in dementia care.J of Aging Stud,26,162-73.
Edvardsson, D., & Nordvall, K. (2007). Lost in the present but confident of the past: experiences of being in a psycho-geriatric unit as narrated by persons with dementia.J Clin Nurs, 491-498.
Elliott, K. S., Di Mino, M., Lam, D., & Mei Tu, A. (1996). Working with Chinese families in the context of dementia. In G. Yeo, & D. Gallagher-Thompson,Ethnicity and the dementia(pp. 89-108). Taylor & Francis.
Elliott, J. (2006).Mike Baldwin told my dementia story. Accessed online on 18 July 2013 at: http://news.bbc.co.uk/2/hi/health/4882156,stm
Enjolras, F. (2005). Incidence du pronostic sur la construction des modèles explicatifs de la maladie d’Alzheimer à l’île de la Réunion.Sciences Sociales et Santé, 2, 60-74.
European Commission (2009).Communication from the Commission to the European Parliament and the Council on a European initiative on Alzheimer's disease and other dementias. European Commission
EWGPWD (2012).Group discussion of European Working Group of People with Dementia. Internal report
Fazio, S. & Mitchell, D.B. (2009), Persistance of self in individuals with Alzheimer’s disease: evidence from language and visual recognition.Dementia,8,39, 39-59.
Ferri, C. P., Prince, M., Brayne, C., Brodaty, H., Fratiglioni, L., Ganguli, M., et al. (2005). Global prevalence of dementia: a Delphi consensus study.The Lancet, 366, 2112.
Fiske, S. T., Cuddy, A. J., Glick, P., & Xu, J. (2002). A model of (often mixed) stereotype content: competence and warmth respectively follow from perceived status and competition.J Person and Soc Psychol,82, 6, 878-902.
Frölich, L. (2008). Risk factors and prevention. In Alzheimer Europe,Dementia in Europe Yearbook(pp.122-138), Alzheimer Europe
Gaines, A. D. (1988). Alzheimer's disease in the context of black (southern) culture.Health Matrix,VI, 4 , 33-38.
Gaines, A. D., & Whitehouse, P. J. (2006). Building a mystery: Alzheimer's disease, mild cognitive impairment, and beyond.Philos, Psychiat and Psychol, 13,1 , 61-74.
Garand, L., Lingler, J.H., O’Conner, K. & Dew, M.A. (2009). Diagnostic labels, stigma and participation in research rleated to dementia and mild cognitive impairment.Res Gerontol Nurs, 2,2, 112-21.
Gelder, M. (2004). The Royal College of Psychiatrists' survey of public opinions about mentally ill people. In A. H. Crisp (Ed.),Every family in the land: understanding prejudice and discrimination against people with mental illness - revised edition(pp. 21-25). London: Royal Society of Medicine Press Ltd.
George, D. R. (2010). Overcoming the social death of dementia through language.The Lancet, 376, August 21
Gerritsen, D. L., Ettema, T. P., Boelens, E., Bos, J., Hoogeveen, F., Lange, J. de, Meihuizen, L., Schölzel-Dorenbos, C. J. M., & Dröes, R. M. (2007). Differences in perspective: do professional caregivers focus on the Quality of life domains that are important for people with dementia?Am J of Alz Dis and Other Dem,22,176-83.
Gerritsen, D. L., Kuin, Y. & Nijboer, J. (2013). Dementia in the movies: the clinical picture.Aging & Mental Health, online re-print version
Girard, R., & Ross, N. (2005). Impact of words.ADI Conference, (S. 1-14). Istanbul.
Goffman, E. (1963).Stigma: notes on the management of spoiled identity.Penguin Books.
Goldsmith, M. (1996).Hearing the voice of people with dementai: opportunities and obstacles. Jessica Kingsley
Gove, D. (2012).GPs, stigma and timely diagnosis: a qualitative exploration of GPs’ perceptions of dementia.PhD thesis. University of Bradford
Graham, J.E. & Bassett, R. (2006). Reciprocal relations: the recognition and co-construction of caring with Alzheimer’s disease.J Aging Stud,20,335-49.
Graham, N., Lindesay, J., Katona, C. et al. (2003). Reducing stigma and discrimination against older people with mental disorders: a technical consensus statement.Int J Ger Psychiatry, 18,670-8.
Green, G. (2009).The end of stigma? Changes in the social experience of long-term illness.London: Routledge.
Gubrium, J. F. (1986).Oldtimers and Alzheimer's: the descriptive organization of senility.Jai Press Inc.
Gzil, F. (2014).La maladie du temps. Presses Universitaires de France. Coll. “Questions de soins”
Gzil, F. (2011).Implementing the principles of autonomy in dementia care. ADI conference, Toronto (28/3)
Haaning, M.G. (2000).Familiers omsorg for hjemmeboende ældre demensramte: en kvalitativ interventionsundersøgelse / Family care for elderly persons with dementia living at home, a qualitative intervention study, Ph.D. dissertation, Institute of Psychology, Copenhagen University.
Hargrave, A.M. & Gatfield, L. (2002).Soap box or soft soap? Audience attitudes to the British soap opera. Broadcasting Standards Commission
Healthtalkonline (2013). Mental health: ethnic minority expiences – messages for professionals. http://www.healthtalkonline.org/mental_health/mentalhealthserviceusers/Topic/3416/
Heatherton, T. F., Kleck, R. E., Hebl, M. R. & Hull, J. G. (2003),The Social Psychology of Stigma.Guilford Press.
Hemmens, J. D., Miller, M., Burton, V. S., & Milner, S. (2002). The consequences of official labels: an examination of the rights lost by the mentally ill and mentally incompetent ten years later.Comm Ment Health Jour, 38,2, 129-40.
Hinshaw, S. P. (2007).The Mark of Shame: Stigma of mental illness and an agenda for change.Oxford University Press.
Hockey, J., & James, A. (1993).Growing up and growing old: ageing and dependency in the life course.Sage.
Hofman, A., Rocca, W. A., Brayne, C., Breteler, M. M., Clarke, M., & Cooper, B. (1991). The prevalence of dementia in Europe: a collaborative study of 1980-1990 findings.Int J Epidem, 20,3, 736-48.
Holmerova, I., Jarolimova, E., Sucha, J. et al. (2009).Péče o pacienty s kognitivní poruchou. Česká alzheimerovská společnost. A Gerontologické centrum.
Holmerova, I., Matlova, M., Vankova, H. & Juraskova, B. (2010). Demence. Med. Pro praxi. Available online ( 5 pages) at: http://www.medicinapropraxi.cz/pdfs/med/2010/03/11.pdf
Hughes, J.C. (2001). Views of the person with dementia.J Med Ethics, 27,86-91.
Hughes, J. C., Louw, S. J., & Sabat, S. R. (2006).Dementia: mind, meaning and the person.Oxford University Press.
Hulko, W. (2009). From "not a big deal" to "hellish": Experiences of older people with dementia.J Aging Stud,23,3, 131-44.
Husband, H. (2000). Diagnostic disclosure in dementia: an opportunity for intervention?Int J Geriatr Psychiat, 15,6, 544-7.
Hussain, A. (2001). Islamic beliefs and mental health.Ment Health Nurs, 21,2-7.
Iliffe, S., De Lepeleire, J., Van Hout, H., Kenny, G., Lewis, A., Vernooij-Dassen, M., et al. (2005). Understanding obstacles to the recognition of and response to dementia in different European countries: A modified focus group approach using multinational, multi-disciplinary expert groups.Aging & Ment Health, 9, 1, 1-6.
Iliffe, S., Manthorpe, J., & Eden, A. (2003). Sooner or later? Issues in the eraly diagnosis of dementia in general practice: a qualitative study.Family Practice, 20,4, 376-81.
Ilifee, S. & Manthorpe, J. (2004). The debate on ethnicity and dementia: from category fallacy to person centred care?Aging & Ment Health, 8,4, 283-92.
International Psychogeriatric Association (2002). Behavioral and psychological symptoms of dementai (BPSD) Educational Pack, Module 1.IPA
Jacobs, C.P. (2013).Film theory and approaches to criticism or what did that movie mean?Accessed online on 4 July 2013 at: http://und.edu/instruct/cjacobs/FilmTheory&Analysis.htm
Jenkins, D., & Price, B. (1996). Dementia and personhood: a focus for care?J Ad Nurs, 24,1, 84-90.
Jones, E. E., Farina, A., Hastorf, A. H., Markus, H., Miller, D. T., & Scott, R. A. (1984).Social stigma: the psychology of marked relationships.WH Freeman and Company.
Jones, R.W., Mackell, J., Berthet, K. & Knox, S. (2010). Assessing attitudes and behaviours surrounding Alzheimer’s disease in Europe: key findings of the important perspectives on Alzheimer’s care and treatment (IMPACT) survey.J Nutr & Ageing, 14,525-30.
Josefsson, K., Sonde, L. & Wahlin, T-B. R. (2007). Violence in municipal care of older people in Sweden as perceived by registered nurses.J Clin Nurs,16, 900-10.
Kaduszkiewicz, H., Bachmann, C., & van der Bussche, H. (2008). Telling "the truth" in dementia - Do attitude and approach of general practitioners and specialists differ?Patient Educ and Couns, 70,220-6.
Kaduszkiewicz, H., Wiese, B., & Van den Bussche, H. (2008). Self-reported competence, attitude and approach of physicians towards patients with dementia in ambulatory care: results of a postal survey.BMC Health Serv Res, 8,54, 1-10.
Kane, M. N. (2002). Awareness of ageism, motivation, and countertransference in the care of elders with Alzheimer's disease.Am J Alz Dis and Other Dem, 17,2, 101-109.
Karenberg, A., & Förstl, H. (2006). Dementia in the Greco-Roman world.J Neurolog Sciences, 244, 5-9.
Kasparkova, J. (2009).Non-pharmacological approaches to affecting cognitive function disorders in the elderly. Ms thesis. Masaryc Universisty. 63
Kasparkova, J. (2013). Personal communication
Katsuno, T. (2005). Dementia from the inside: how peole with early-stage dementia evaluate their quality of life.Ageing & Soc,25, 197-214.
Katzman, R., Terry, R. D., & Bick, K. L. (1978).Alzheimer's disease: senile dementia and related disorders.New York: Raven Press.
Keady, J. (1996). The experience of dementia: a review of the literature and implications for nursing practice.Journal of Clinical Nursing, 5, 275-88.
Keady, J. & Nolan, M. (2003). The dynamics of dementia: working together, working separately or working alone? In M. Nolan, U. Lundh, G. Grant & J. Keady (Eds.).Partnerships in family care: understanding the caregiving career, pp.14-32, Open University
Kennard, C. (2005). Is dementia age-related? http://alzheimers.about.com/od/research/a/age_dementia.htm
Kirkman, A. M. (2006). Dementia in the news: the media coverage of Alzheimer's disease.Australasian J Ageing, 25,2, 74-79.
Kissel, E. C., & Carpenter, B. D. (2007). It´s all in the details: physician variability in disclosing a dementia diagnosis.Aging & Ment Health, 11,3, 273-80.
Kitwood, T. (1990). The dialectics of dementia: with particular reference to Alzheimer’s disease.Ageing and Soc, 10,2, 177-96.
Kitwood, T (1997).Dementia reconsidered: the person comes first. Open University Press
Krull, A. C. (2005). First signs and normalizations: caregiver routes to the diagnosis of Alzheimer's disease.J Aging Stud, 19,407-17.
Kuhse, H. (1999). Some reflections on the problem of advance directives, personhood and personal identity.Kennedy Inst of Ethics Journal, 9,4, 65-81.
Kurzban, R., & Leary, M. R. (2001). Evolutionary origins of stigmatization: the function of social exclusion.Psychol Bull, 127, 187-208.
La Fontaine, J., Ahuja, J., Bradbury, N. M., Phillips, S., & Oyebode, J. R. (2007). Understanding dementia amongst people in minority ethnic and cultural groups.J Adv Nurs, 60,6, 605-14.
Lakoff, G. (1991).Metaphor and war: The metaphor system used to justify war in the gulf (part 1 of 2). Accessed online on 11 July 2013 at: http://www.amyscott.com/metaphor_and_war.htm
Landrine, H. & Klonoff, E.A. (1994). Cultural diversity in causal attributions for illness: the role of the supernatural.J of Behav Med,17,2, 181-93
Lane, H.P.. McLachlan, S. & Philip, J. (2013). The war against dementia: are we battle weary yet?Age and Ageing, 42,281-3.
Lauber, C., Nordt, C., Braunschweig, C., & Rössler, W. (2006). Do mental health professionals stigmatize their patients?Acta Psychiatrica Scandinavica, 113 (Suppl. 249), 51-9.
Leibowitz, R. (1999). Genetic testing without treatment: the value of knowledge for its own sake.Med Ethics, 1,1, 4-5.
Lee, S. E., Lee, H. Y., & Diwan, S. (2010). What do Korean American immigrants know about Alzheimer's disease (AD)? The impact of acculturation and exposure to the disease on AD knowledge.Int J Ger Psychiat, 25,66-73.
Lerner, M. J. (1980).The belief in a just world: a fundamental delusion.New York: Plenum.
Link, B. G., & Phelan, J. C. (2001). Conceptualizing stigma.Ann Rev Sociol, 27,363-85.
Link, B. G., & Phelan, J. C. (2006). Stigma and its public health implications.The Lancet, 367, 528-529.
Low, L.-F., & Anstey, K. J. (2009). Dementia literacy: recognition and beliefs on dementia of the Australian public.Alz & Dementia, 5,43-9.
Luntley, M. (2006). Keeping track, autobiography, and the condtions for self-erosion. In J. C. Hughes, S. L. Louw, & S. R. Post,Dementia: mind, meaning and the person.Oxford University Press, 105-21.
Lyman, K. (1989). Bringing the social back in: a critique of the biomedicalization of dementia.The Gerontologist, 29,597-65.
Mackenzie, J. (2006). Stigma and dementia - East European and South Asian family carers negotiating stigma in the UK.Dementia, 5,2, 233-49.
MacRae, H. (1999). Managing courtesy stigma: the case for Alzheimer's disease.Soc Health & Illn, 21,1, 54-70.
Mahendra, B. (1987).Dementia, a survey of the syndrome of dementia.Lancaster, England: MTP Press Limited.
Mahieu, L., & Gastmans, C. (2012). Sexuality in institutionalized elderly persons: a systematic review of argument-based ethics literature.International Psychogeriatrics, 24, 3, 346-57.
Mahoney, D.F., Cloutterbuck, J., Neary, S. and Zhan, L. (2005). African American, Chinese, and Latino family caregivers’ impressions of the onset and diagnosis of dementia: cross cultural similarities and differences.The Gerontologist, 45,6, 783-92
Maisondieu, J. (1989).Crépuscule de la raison. Bayard
Markham, D. (2003). Attitudes towards patients with a diagnosis of "borderline personality disorder": Social rejection and dangerousness.J of Ment Health, 12,6, 595-612.
Markus, H. R., & Nurious, P. S. (1986). Possible selves. American Psychologist,41, 954-69.
Martens, A., Goldenberg, J. L., & Greenberg, J. (2005). A terror management perspective on ageism.J Soc Issues, 61,2, 223-39.
Martin, J., Pescosolido, B., & Tuch, S. (2000). Of fear and loathing: The role of disturbing behavior, labels, and causal attributions in shaping public attitudes towards people with mental illness.J Heal & Soc Beh, 41,208-33.
Mataityte-Dirziene, J., & Sumskiene, E. (2009). Anti-stigma campaigns as a means of promoting employment of users of mental health services.Stigma & Discrimination: Evidence for Action(p. 35). Institute of Psychiatry.
McColgan, G. (2004). Images, constructs, theory and method: including the narrative of dementia. In A. Innes, C. Archibold, & C. Murphy,Dementia and Social Inclusion: marginalised groups and marginalised areas of dementia research, care and practice(pp. 169-183). Jessica Kingsley Publishers.
McGowin, D. F. (1993).Living in the labyrinth: a personal journey through the maze of Alzheimer's.Elder Books.
MDAC (Mental Disability Advocacy Center) and SHINE (2011). Out of sight: Human rights in psychiatric hospitals and social care institutions in Croatia. Budapest, MDAC
Mead, G. H. (1934).Mind, self & society: from the standpoint of a social behaviorist. Volume 1.The University of Chicago Press
Miles, A. (1981).The mentally ill in contemporary society.Oxford: Robertson.
Milne, A. (2010). The “D” word: Reflections on the relationship between stigma, discrimination and dementia.J Ment Health, 19,3, 227-33.
Miyamoto, M., George, D.R. & Whitehouse, P.J. (2008). Government, professional and public efforst in Japan to change the designation of dementia (chiho).Dementia, 10,4, 475-86.
Montepare, J. M., Steinberg, J., & Rosenberg, B. (1992). Characteristics of vocal communication between young adults and their parents and grandparents.Communic Res,19 , 479-92.
Murphy, R.F. (1987).The body silent. Norton
Nelson, T. D. (2002).Ageism: stereotyping and prejudice against older persons.Cambridge, MA: The MIT Press.
Ngatcha-Ribert, L. (2004). Maladie d’Alzheimer et société: une analyse des représentations sociales.Psychologie et Neuropsychiatrie du Vieillissement, 2, 49-66
Noble-Adams, R. (1999). Ethics and nursing research. 1. Development, theories and principles.British Journal of Nursing, 8, 888-92
Nolan, L., McCarron, M., McCallion, P., Murphy-Lawless, J. (2006).Perceptions of stigma in dementia: an exploratory study.Trinity College Dublin and The Alzheimer Society of Ireland.
Nuffield Council on Bioethics. (2009).Dementia: Ethical issues.Nuffield Council on Bioethics.
Oakley, T. (undated). Toward a general theory of film spectatorship. Accessed on 4/9/2013 at: http://case.edu/artsci/engl/Library/Oakley-TheoryFilmSpectator.pdf
“Pat, James and Ian” (undated). Don’t make the journey alone: a message from fellow passengers. Alzheimer Scotland. Can be downloaded at: http://www.alzscot.org/assets/0000/0269/dontmake.pdf
Parfit, D. (1984).Reasons and Persons.Oxford: Clarendon Press.
Penn, D. L. & Nowlin-Drummond. A. (2001). Politcally correct labels and schizophrenia: A rose by any other name,Schiz Bull, 27,2, 197-203.
Pentzek, M., Fuchs, A., & Abholz, H. H. (2005). Die Einstellungen der Hausärzte zu Demenzen.Nervenheilkunde, 6,499-506.
Pescosolido, B. A., Monahan, J., Link, B. G., Stueve, A., & Kikuzawa, S. (1999). The public's view of the competence, dangerousness, and need for legal coercion of persons with mental health problems.Amer J of Pub Health, 89,9, 1339-45.
Petrini, C. (2011). Informed consent from cognitively impaired persons participating in research trials: comparative law observations.Ann Istituto Super Sanita47, 4, 353-62
Piehl, F. (2009).J’ai peur d’oublier. Michel Lafon
Pin-Le-Corre, S., & Cantegreil, I. (2009).Factors contributing to fear for getting Alzheimer's disease; analysis based on the findings of a national quantitative survey.Presentation at IAGG conference (Paris, July 2009).
Plassman, B.L., Langa, K.M., Fisher, G.G., Heeringa, S.G. et al. (2007). Prevalence of dementia in the United States: the aging, demographics, and memory study.Neuroepidemiology, 29,125-32.
Podlesak, A. (2013). Cecilia’s long goodbye. Accessed online on 4 july 2013 at: http://www.alzheimers.org.uk/site/scripts/documents_info.php?documentID=593
Porter, R. (2003).Madness: a brief history.Oxford University Press
Post, S. G. (1995). The moral challenge of Alzheimer disease: Ethical issues from diagnosing to dying. 2nd edition. John Hopkins University Press
Price, E. (2008). Pride or Prejudice? Gay men, lesbians and dementia.Brit J Soc Work, 38,1337-52.
Puhl, R.M. & Heuer, C.A. (2009). The stigma of obesity: a review and update.Obesity, 17,5, 941-64.
Purandare, N., Luthra, V., Swarbrick, C., & Burns, A. (2007). Knowledge of dementia among South Asian (Indian) older people in Manchester, UK.Int J Geriatr Psychiat, 22,777-81.
Rimmer, E., Wojciechowska, M., Stave, et al.. (2005). Implications of the facing dementia survey for the general population, patients and caregivers across Europe.Int J Clin Practice, 59,Suppl. 146, 17-24.
Roberts, J. S., Connell, C. M., Cisewski, D., Hipps, Y. G., Demissie, S., & Green, R. C. (2003, 17, 1). Differences between African American and Whites in their perceptions of Alzheimer disease.Alz Dis and Assoc Dis, 19-26.
Robinson, A., Enden, C.G., Elder, J.E. & Lea, E. J. (2008). Multiple views reveal the complexity of dementia diagnosis.Australasian J on Ageing, 27,4, 183-8.
Robinson, H. (2012). "Dualism", The Stanford Encyclopedia of Philosophy (Winter 2012 Edition), Edward N. Zalta (ed.), Accessed on 26/8/2013 at: http://plato.stanford.edu/archives/win2012/entries/dualism/.
Robinson, J., Pond, C.D., Paterson, N.E., Howel, C., et al. (2012). Difficulties in disclosing the diagnosis of dementia: a qualitative study in general practice.British Journal of General Practice, 2546-e552
Rolland-Dubreuil et al., /2003). Diagnostique de la maladie d’Alzheimer et experiences de la personne atteinte. L’Année Gérontologique,17,100-113.
Rose, D., Thornicraft, G., Pinfold, V., & Kassam, A. (2007). 250 labels used to stigmatise people wtih mental illness.BMC Health Serv Res, 7,97.
Rozin, P., Markwith, M., & McCauley, C. (1994). Sensitivity to indirect contacts with other persons: AIDS aversion as a composite of aversion to strangers, infection, moral taint, and misfortune.J Ab Psy, 103,495-505.
Ruff, R. (2013). Change the warfare metaphors when it comes to illness. Accessed on 11/7/2013 at: http://www.kevinmd.com/blog/2013/04/change-warfare-metaphors-illness.html
Sabat, S. R. (1994). Excess disability and malignant social psychology: a case study of Alzheimer's disease.J Commun and Appl Soc Psychol,4, pp.157-66.
Sabat, S. R. (2002). Surviving manifestations of selfhood in Alzheimer’s disease: a case study.Dementia, 1,1, 25-36.
Sabat, S. R. (2008). A bio-psycho-social approach to dementia. In M. Downs & B. Bowers,Excellence in dementia care: research in practice,pp. 70-84, Open University Press
Sabat, S. R. (2011). A bio-psycho-social model enhances young adults' understanding of and beliefs about people wtih Alzheimer's disease: a case study.Dementia, 11,1, 95-112.
Sahin, H. A., Gurvit, I. H., Emre, M., Hanagasi, H. A., Bilgic, B., & Harmanci, H. (2006). The attitude of elderly lay people towards the symptoms of dementia.Int Psychogeriatr, 18,251-8.
Sabat, S.R. & Harré, R. (1992). The construction and deconstruction of self in Alzheimer’s disease.Ageing and Society,12,443-61
Sands, L. P., Ferreira, P., Stewart, A. L., Brod, M. & Yaffe, K. (2004). What explains differences between dementia patients' and their caregivers' ratings of patients' quality of life?Am J Geriatr Psychiat, 12, 3, 272-80.
Scheidt, R.J., Vanden Bosch, J. & Kivnick, H.Q (2013). Alzheimer’s at the movies: a look at how dementia is portrayed in film and video: dementia on the silver screen.The Gerontologist, 53,1, 172-3.
Scholl, J. M., & Sabat, S. R. (2008). Stereotypes, stereotype threat and ageing: implications for the understanding and treatment of people with Alzheimer's disease.Ageing & Soc,28, pp.103-30.
Schomerus, G., Matschinger, H., & Angermeyer, M. C. (2006). Preferences of the public regarding cutbacks in expenditure for patient care: Are there indications of dicrimination against those with mental disorders?Soc Psychiatry Psychiatr Epidemiol, 41,369-77.
Scodellaro, C. & Pin, S. (2013). The ambiguous relationship between aging and Alzheimer’s disease: a critical literature review.Dementia, 12,1, 137-51
Segers, K. (2007). Degenerative dementias and their medical care in the movies.Alz Dis & Assoc Dis, 21,55-9.
Shakespeare, T. (2006). Looking back, moving forward. Accessed online on 4 September 2013 at: http://www.bbc.co.uk/ouch/opinion/looking_back_moving_forward.shtml
Silvers, A (2009), Feminist perspectives on disability. Accessed online on 22 March 2010 at: http://plato.stanford.edu/entries /feminism-disability/
Small. J.A., Geldart. K., Gutman, G. and Clarke Scott, M.A. (1998). The discourse of self in dementia.Ageing and Society,18,291-316.
Smith, G.M. (2004). Film structure and the emotion system. Cambridge University Press. Accessed online on 29 July 2013 at: http://www2.gsu.edu/~jougms/FSch1.htm
Smythe, A., Jenkins, C., Bentham P. & Oyebode, J.R. (In press). An exploration of the experiences of staff working within a specialist mental health service in relation to development of the skills for the provision of person centred care for people with dementia. Dementia.
Soini, S. (2012). Genetic testing legislation in Western Europe – a fluctuating regulatory target.J Community Genet,3,143-53.
Sontag, S. (1990).Illness and metaphor and AIDS and its metaphors.London: Penguin.
Southern, A. (2013). Genetic testing and insurance. Alzheimer’s Society. Accessed on 12/11/2013 at: http://www.alzheimers.org.uk/site/scripts/documents_info.php?documentID=435
Stanculescu, M., Ciumageanu, M., & Sfetcu, R. (2009). Public stereotypes of mental disorders in Romania - a case vignette study.Stigma & Discrimination: Evidence for Action(S. 49). London: Institute of Psychiatry.
Stangor, C., & Crandall, C. S. (2003). Threat and the social construction of stigma. In T. F. Heatherton, R. E. Kleck, M. R. Hebl, & J. G. Hull,The Social Psychology of Stigma(pp. 62-87). The Guilford Press.
Steeman, E., Godderis, J., Grypdonck, M., De Bal, N., & Dierckx de Casterlé, B. (2007). Living with dementia from the perspective of older people: Is it a positive story?Aging & Ment Health, 11,2, 119-30.
Stevenson, S.J. (2013). Alzheimer’s and dementia in popular culture. Accessed online on 18 July 2013 at: http://www.aplaceformom.com
Stirling, E. (2010).Valuing Older People: Positive Psychological Practice.Wiley-Blackwell. Chichester.
Stratton, D., & Tadd, W. (2005). Dignity in older people: the voice of society.Qual in Age Policy, Pract and Res, 6,1, 37-45.
Swain, J., French, S. and Cameron, C. (2003).Controversial Issues in a Disabling Society. Buckingham: OU Press
Swane, C. (1996).Everyday life with dementia: Images and experience in a cultural gerontological perspective. Extract/summary from PhD thesis
Swane, C. (2008). “Stigmatisering ved demens”. In Demens & Alderspsykiatri,12, 4, 35-7.
Sweeting, H.N. (1991).Caring for a relative with dementia: anticipatory grief and social death: volume 1 of two volumes of PhD thesis. University of Glasgow,
Sweeting, H. and Gihooly, M. (1997). Dementia and the phenomenon of social death.Sociol of Health & Illness, 19,1, 93-117
Swinnen, A. (2012). “Everyone is Romeo and Juliet!” Staging dementia in Wellkåmm to Verona by Suzanne Osten.J of Ag Stud,26,309-18.
Thorngrimsen, L., Selwood, A., Spector, A., Royan, L., de Madariaga Lopez, M., Woods, R. T., et al. (2003). Whose quality of life is it anyway? The validity and reliability of the Quality of Life-Alzheimer's Disease (QoL-AD) scale.Alz Dis and Assoc Dis, 17,4, 201-8.
Thornicroft, G. (2006).Shunned: discrimination against people with mental illness.Oxford University Press.
Tsolaki, M., Paraskevi, S., Degleris, N., & Karamavrou, S. (2009). Attitudes and perceptions regarding Alzheimer's disease in Greece.American Journal of Alzheimer's Disease and Other Dementias; 24,1, 21-26.
Tunnally J. (2002).Later life parent-child relationships and the transition to care. Unpublished ClinPsyD thesis, Unversity of Birmingham.
United Nations General Assembly (2006). Convention on the rights of persons with disabilities. United Nations. See: http://www.un.org/disabilities/documents/convention/convoptprot-e.pdf
United Nations (2012).UN leads the way on disability rights. Officer of the High Commissioner for Human Rights. Accessed on 26/8/2013 at: http://www.ohchr.org
Uwakwe, R. (2000). Knowledge of religious organizations about dementia and their role in care.Int J Geriatr Psychiatr, 15,1152-7.
Van, Gorp, B. & Vercruysse, T. (2011). Frames and counter-frames giving meaning to dementia: a framing analysis of media content.Soc Sci and Med, 74, 1274-81.
Van, Gorp, B., Vercruysse, T. & Van den Bulck (2012). Toward a more nuanced perception of Alzheimer’s disease: designing and testing a campaign advertisement.Am J Alz Dis & Oth Dem, 26,7, 388-96.
Van Hout, H., Vernooij-Dassen, M., Bakker, K., Blom, M., & Grol, R. (2000). General practitioners on dementia: tasks, practices and obstacles.Patient Educ and Couns, 39,219-25.
van Vliet D, de Vugt, M.E., Bakker, C., Pijnenburg, Y.A., Vernooij-Dassen, M.J., et al. (2013).Time to diagnosis in young-onset dementia as compared with late-onset dementia.Psychol Med.43,2, 423-32.
Vaswani, K. (2013). Mentally ill patients in Indonesia held in chains. Accessed online on 19 April 2013 at: http://www.bbc.co.uk/news/health-22076563
Velasco-Suarezm M., Bautista Martinz, J,. Garcia Oliveros, R. & Weinstein, P.R. (1992). Archaeological origins of cranial surgery: trephination in Mexico.Neurosurgery, 31,2, 318-9.
Vernooij-Dassen, M., Leatherman, S., & Olde Rikkert, M. (2011). Quality of care in frail older people: the fragile balance between receiving and giving,BMJ,342,1062-3.
Vernooij-Dassen, M. J., Moniz-Cook, E., Woods, R. T., De Lepeleire, J., Leuschner, A., Zanetti, O., et al. (2005). Factors affecting timely recognition and diagnosis of dementia across Europe: from awareness to stigma.Int J Geriatr Psychiat, 20,377-86.
Wadley, V. G., & Haley, W. E. (2001). Diagnostic attributions versus labeling: impact of Alzheimer's disease and major depression diagnoses on emotions, beliefs, and helping intentions of family members.J Gerontol B Psychol Sci Soc Sci, 56,4, 244-52.
Waldemar, G., Dubois, B., Emre, M., Georges, J., McKeith, I. G., Rossor, M., et al. (2007). Recommendations for the diagnosis and management of Alzheimer's disease and other disorders associated with dementia: EFNS guideline.Eur J Neurol, 14,e1-e26.
Wallace (2013),Presentation at first ethics working group meeting, June 2013, Brussels
Walters A., Oyebode,J.R. & Riley, G. (2010). The dynamics of continuity and discontinuity in caring for a spouse with dementia.Dementia: The International Journal of Social Research and Practice, 9,169-89.
Weber (1921). Politics as a vocation. From H.H. Gerth and C. Wright Mills (Translated and edited), From Max Weber: Essays in Sociology, pp. 77-128, New York : Oxford University Press, 1946.
Weiner, B., Perry, R. P., & Magnussen, J. (1988). An attributional analysis of reactions to stigmas.J Personal and Soc Psychol, 55,5, 738-48.
Wendell, S (1996),The rejected body: Feminist philosopical reflections on disability.London: Routledge
Werner, P. (2002). Assessing coorelates of concern about developing Alzheimer's dementia among adults with no family history of the disease.Amer J Alz Disease & Oth Dem, 17,6, 331-7.
Werner, P. (2004). Perceptions about memory problems and help seeking in elderly persons: a qualitative analysis.Clin Gerontol, 27,19-30.
Werner, P. (2005). Social distance towards a person with Alzheimer's disease.Int J Geriatr Psychiat, 20, 182-8.
Werner, P., Mittelman, M.S., Goldstein, D. & Heinik, J. (2011). Family stigma and caregiver burden in Alzheimer’s disease.The Gerontologist, 52,1, 89-97.
Werner, P. (2008). Discriminatory behavior towards a person with Alzheimer's disease: Examining the effects of being in a nursing home.Aging & Ment Health, 12,6, 786-94.
Werner, P., & Davidson, M. (2004). Emotional reactions of lay persons to someone with Alzheimer's disease.Int J Geriatr Psychiat, 19,391-7.
Werner, P., & Giveon, S. M. (2008). Discriminatory behavior of family physicians toward a person with Alzheimer's disease.Int Psychogeriatr, 20,4, 824-39.
Werner, P., & Heinik, J. (2008). Stigma by association and Alzheimer's disease.Int J Ger Psychiat,12,1, 92-9.
Werner, P., Goldstein, D., & Buchbinder, E. (2010). Subjective experience of family stigma as reported by children of Alzheimer's disease patients.Qualit Health Res, 20,2, 159-69.
Weston, D. (2012). PM visits UCL institute of neurology. Accessed on 4/9/2013 at: http://www.ucl.ac.uk
White, P.D., Rickards, H. & Zeman, A.Z.J. (2012). Time to end the distinction between mental and neuroogical illnesses,BMJ,344, 26-8.
Whitehouse, P. (2013). The challenges of cogntive aging: integrating approaches from neuroscience to intergenerational relationships.Journal of Intergenerational Relationships,11,105-17.
Widrick, R.M. & Raskin, J.D. (2010). Age-related stigma and the golden section hypothesis.Aging & Ment Health, 14,4, 375-85.
Wiggins, N. M. (2012). Stop using military meaphors for disease.BMJ,345, 31.
Wikipedia (2013). Demon. Accessed on 15 November 2013 at: http://en.wikipedia.org/wiki/Demon
Williams, N., Dunford, C., Knowles, A. & Warner, J. (2007). Public attitudes to life-sustaining treatments and euthanasia in dementia.Int J Geriatr Psychiat, 22,1229-34.
Wolfensberger, W. (1998). A brief introduction to Social Role Valorization: A High-Order Concept for Addressing the Plight of Societally Devalued People, and for Structuring Human services(3rd rev ed ). Syracuse New York, Syracuse University, Training Institute for Human service Planning, Leadership and Change Agency.
Woods, R. T., Moniz-Cook, E., Iliffe, S. et al. (2003). Dementia: issues in early recognition and intervention in primary care.J R Soc Med, 96,7, 320-4.
World Health Organization (2008).Integrating mental health into primary care: a global perspective. WHO/WONCA
World Health Organization. (2012).Dementia: A public health priority.World Health Organization.
World Health Organization. (2002).Reducing stigma and discrimination against older people with mental disorders: a technical consensus statement.Geneva: WHO.
Wortmann, M., Andrieu, S., Mackell, J., & Knox, S. (2010). Evolving attitudes to Alzheimer's disease among the general public and caregivers in Europe: findings from the impact survey.J Nutr, Health & Aging, 14,7, 531-6.
Wozniak, R.H. (1995).René Descartes and the legacy of mind/body dualism. Accessed online on 24 June 2013 at: http://serendip.brynmawr.edu/Mind/Descartes.html
Wuest, J., Ericson, K. P., & Noerager Stern, P. (1994). Becoming strangers: the changing family caregiving relationship in Alzheimer's disease.J Adv Nurs, 20,437-43.
Yalom, I. D. (1980),Existential Psychotherapy. Basic Books
Yeo, L. J., Horan, M. A., Jones, M., & Pendleton, N. (2007). Perceptions of risk and prevention of dementia in the healthy elderly.Dement Geriatr Cogn Disord,23,368-71.
Zeilig, H. (2013), Dementia as a cultural metaphor.The Gerontologist(advance access)
Zeisel, J. (2010). I’m still here: a breakthrough approach to understanding someone living with Alzheimer’s. Piatkus
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