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Previous Members

Stig Atle Aavik

Stig Atle Aavik was born in 1959 in Stockholm, Sweden of Norwegian parents. He studied at the Norwegian Army Academy and earned a Master’s degree from the Norwegian School of Business Administration in 1994. Stig has three children and is an avid cross-country skier.

He was diagnosed with Alzheimer’s disease on 1 May 2012 and joined the European Working Group of People with Dementia in October of the same year.

Stig was nominated by Nasjonalforeningen Demensforbundet. He served on the EWGPWD during 2012-2014.

Hilary Doxford

In December 2012, at the age of 53 Hilary was diagnosed with early onset Alzheimer's Disease. She is keen to do all she can to assist in finding a cure for dementia and volunteers for the Alzheimer’s Society in England as part of their research network and user involvement programme.

She is still working and intends to continue working for as long as possible to show that people with dementia can still make a valuable contribution to their organisation.

Hilary is also a member of the World Dementia Council, and indeed was the first person living with dementia to join, in January 2015.

At home she enjoys anything to do with archaeology and she and her husband love the sea and walking their dog Tilly.

Hilary was nominated by the Alzheimer's Society. She joined the EWGPWD in October 2014 and served as a Vice-Chairperson until 2016.

Jean-Pierre Frognet

Jean-Pierre was diagnosed with Alzheimer's disease in 2007 and joined Belgium’s Ligue Nationale Alzheimer Liga to find out more about his condition. The Ligue nominated him as a member of the EWGPWD, on which he served from 2012 to 2014 and was elected as Vice Chairperson in 2013.

He was very active in the group and also participated in Alzheimer Europe’s annual conferences in Malta (2013) and Glasgow (2014). He was particularly keen to see more services for younger people with dementia, so they can remain active for a longer time.

Jean-Pierre passed away on 7 April 2016.

Raoul Grönqvist

Raoul Grönqvist was born in 1951 in Helsinki, Finland. He is a tribologist and a Doctor of Technology and speaks four languages. He likes to play classical guitar and also enjoys walking his poodle.

He was diagnosed with Alzheimer’s disease and dementia with Lewy bodies at the age of 60 and hopes that his work experience will help him contribute to the work of the EWGPWD and consequently help other people with dementia. He is also part of a self-support group in Finland.

Raoul was nominated by Muistiliitto and served on the EWGPWD during 2012-2016.

Agnes Houston

Agnes was diagnosed with Early Onset Alzheimer’s Dementia in 2006 at the age of 57.

She is an active member and Former Chair of the Scottish Dementia Working Group. Agnes has a long track record of campaigning for best practice and improving lives of people with dementia, in Scotland and abroad. She is also a board member of Dementia Alliance International.

In 2016, she was awarded a Churchill Fellowship to conduct research on sensory challenges faced by people with dementia.

Agnes was nominated by Alzheimer Scotland. She joined the EWGPWD in 2012 and served as Vice-Chairperson of the group until 2016.

Ingegerd Pousard

Ingegerd Pousard was born in March 1941 in Östersund, Sweden. She has three daughters and spent most of her working life as a doctor’s secretary.

In May 2008 she received a diagnosis of dementia. Since then, together with her family, she has tried to understand a life with Alzheimer’s disease. Ingegerd is particularly interested in discovering and sharing new information about dementia. In 2012, she was elected as a member of the EWGPWD.

Ingegerd was nominated by Alzheimerföreningen i Sverige. She served on the EWGPWD during 2012-2014.

Dermod Slevin

Dermod was born on March 3rd 1940. He was born and reared in Donnybrook in Dublin. Dermod spent 35 years working for the national broadcaster RTÉ as a technician, involved in the installation of broadcasting equipment throughout the country. He took early retirement and opened a coffee shop in Donnybrook, but due to unfortunate circumstances was forced to give this up. Dermod has enjoyed travel over the years and has visited Spain, Thailand, Cambodia and Norway. He was diagnosed with Lewy Body Dementia in 2010 at the age of 70. In 2012, he became Ireland’s representative on the European Working Group of People with Dementia.

Dermod was nominated by the Alzheimer Society of Ireland and served on the EWGPWD during 2012-2014.

Rozel Snell

Rozel was born in 1944 in Southampton and grew up in Jersey.

She is diagnosed with both Alzheimer's and Parkinson’s diseases. Her visit to the 2012 Alzheimer Europe Conference was a wonderful experience: being able to stand up and speak about her condition without fear was an experience she has never felt before.

Rozel has three sons and lives at home with her husband Brian - without whom she admits life would be quite difficult.

Rozel was nominated by the Jersey Alzheimer's Association and served on the EWGPWD during 2012-2015.

Bojan Španja

Bojan was born in June 1955 in Ljubljana, Slovenia. He trained as a systems engineer and worked for 20 years in the computer department of a big company. In 1996, he established his own company and successfully developed and sold computer software for 13 years.

He has always been an avid sportsman and angler, as well as a motorsports fan. Bojan was diagnosed with Alzheimer's disease in 2010 and became a member of the EWGPWD in 2012.

Bojan was nominated by Alzheimer Slovenija and served on the EWGPWD during 2012-2015.

Daphne Wallace

Daphne Wallace was born in 1940. She spent most of her childhood in Scotland but then moved with her family to southern England. She studied Medicine at the University of St Andrews and specialised in Psychiatry. Daphne initially worked with people with mental retardation but then changed to care of the elderly: she was notably involved in setting up services for older people in Leeds. She retired in 2000 and was also a Trustee of Alzheimer's Society UK for 12 years. In 2005, Daphne was diagnosed with vascular dementia. Since then, she has campaigned for the rights of people with dementia and has been involved in research projects related to the rights and care of people with dementia. Since October 2012, she represents the Alzheimer's Society UK on the European Working Group of People with Dementia.

Daphne was nominated by the Alzheimer's Society. She served on the EWGPWD during 2012-2014.

 

 
 
 

Last Updated: Thursday 10 November 2016

 

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