2006-2008: European Collaboration on Dementia (EuroCoDe)
The aim of the project is to develop a European network of all the players active in the area of dementia to jointly develop consensual indicators and to develop an ongoing dialogue between these actors to identify ways of developing synergies and a closer collaboration on a European level.
For the development of these guidelines and indicators, the network will bring together a number of established pan-European organisations, European projects and informal collaborations, such as the Cochrane Dementia and Cognitive Improvement Group, the European Alzheimer's Disease Consortium, the European Association of Geriatric Psychiatry, the dementia panel of the European Federation of Neurological Societies, the INTERDEM (Early detection and timely intervention in dementia)group, the International Association of Gerontology (European region) and the North Sea Dementia Research Group. Recognising the global dimension of dementia and the need to extend its collaborative efforts, Alzheimer Europe will furthermore actively involve Alzheimer's Disease International.
The EuroCoDe project will develop 6 specific projects:
1. Consensual Prevalence rates
The project will gather existing epidemiological studies and analyse the respective merits and shortcomings of the individual studies. Based on the report on these studies, consensual European prevalence rates will be developed that will be acceptable to all partners and used as a “golden standard” within the respective organisations. Particular attention will be given to providing a breakdown between various forms of dementia (Alzheimer’s disease, vascular dementia, Lewy-body dementia, fronto-temporal dementias and other rarer forms of dementia), as well as between the different stages of the disease (mild, moderate and severe stages).
2. Guidelines on diagnosis and treatment
The aim of the project is to identify already existing guidelines and establish a comparative report on commonalities and differences. This report will then be used to develop consensual guidelines acceptable to the various networks and project partners.
3. Guidelines on non-pharmacological interventions
The project will identify studies on the effects and usefulness of various interventions and present them in a comparative report highlighting the strengths and weaknesses of the respective studies and the studied interventions. Based on the findings, the project will aim to elaborate consensual guidelines on non-pharmacological interventions.
4. Risk factors and risk reduction and prevention strategies
As part of the project, existing studies on risk factors for Alzheimer's disease and other forms of dementia will be collected and presented in a comparative report highlighting promising venues for the development of prevention strategies. Particular attention will be given to developing recommendations for national Alzheimer association to use in conjunction with campaigns promoting a “healthy brain lifestyle”
5. Socio-economic cost of Alzheimer’s disease
The project will aim to collect existing studies and present its findings in a comparative report. Furthermore, taking into account economic differences between the various Member States of the European Union, the project will result in the publication of a report on the socio-economic impact of dementia in Europe.
6. Inventory of social support systems
The project partners will carry out a survey on the existing level of support available for people with dementia and their carers in the 25 Member States of the European Union and the accession countries. Such a survey will look at the different treatment reimbursement systems, the level of carers allowances and benefits, care insurance systems, employment related benefits (such as carers’ leave, flexible working time, pension systems) and other benefits. The findings will be presented in a comparative report and discussed with the other network and project partners in order to identify best practices.
Last Updated: Wednesday 25 April 2012