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2016 Work Plan

Our work

2016 Work Plan

The Strategic Plan of Alzheimer Europe sets out the four main objectives of the organisation and highlights key aims and actions to be undertaken under each objective for the period covered by the plan (2016-2020). Annual Work Plans need to be developed in order to prioritise the actions to be undertaken and to match existing staff and financial resources with the objectives to be reached.

The 2016 Work Plan was adopted at the Annual General Meeting in Ljubljana on 2 September 2015.

Alzheimer Europe Core activities

Objective 1: Making dementia a European priority

In 2016, Alzheimer Europe will

  • continue its work to see dementia recognised as a European priority and build on the Glasgow Declaration calling for the development of a European dementia strategy
  • collaborate with its member organisations to develop a detailed European dementia strategy with concrete actions to be implemented at national and European level
  • coordinate with the Dutch and Slovak Presidencies and actively contribute to the Dutch Presidency Conference on Dementia
  • continue its work with the European Alzheimer’s Alliance and aim to have 125 Members of the European Parliament from all EU countries by the end of the year
  • involve members of the European Alzheimer’s Alliance in the organisation of two lunch debates in the European Parliament
  • encourage Members of the European Parliament to develop an own-initiative report on dementia and actively support the development of such a report
  • develop close working relationships with the new Joint Action on Dementia coordinated by the Scottish Government and contribute to the four priority actions of timely diagnosis and post-diagnostic support, crisis management and care coordination, quality of residential care and dementia-friendly communities
  • ensure that EU and global leaders on dementia will have the opportunity to present their programmes and campaigns at AE meetings and its Annual Conference
  • play an active role on the Patients’ and Consumers’ Working Party of the European Medicines Agency
  • develop a comprehensive public affairs strategy and create a standing public affairs committee to support AE staff in the development of policy statements
  • organise two face-to-face meetings of the public affairs committee for an exchange on EU and national policy developments and campaigns and to explore the possibility of hosting web conferences of the public affairs committee
  • play an active role as a member of the European Patients’ Forum and support the development of positions and statements from the broader patient and carer community in response to EU policy developments
  • collaborate with Alzheimer’s Disease International on its campaign to make dementia a priority at WHO, OECD, G7 and G20 level

Objective 2: Supporting policy with facts

In 2016, Alzheimer Europe will

  • continue with the development of its European Dementia Observatory by proactively identifying relevant policy and research developments and communicating them to its member organisations and wider community
  • identify legal capacity and proxy decision making as the focus of its 2016 Yearbook, update the existing national reports, produce a comparative report and identify best practices in this field,
  • develop a new communication strategy and improve all communication tools such as its e-mail newsletter, its Dementia in Europe magazine and its website
  • continue to partner with Newsweaver for the sending of its e-mail newsletter and aim to expand the list of people receiving the newsletter to 7,500
  • promote its website and attract 750,000 unique visitors to its website in 2016
  • ensure social media are a full part of the organisation’s communication activities and aim to have 5,000 Twitter followers and 8,000 Facebook likes by the end of the year
  • involve its Expert Advisory Panel in commenting on and providing context to breaking research stories
  • publish a Research Digest at the end of the year highlighting the key scientific developments in different scientific areas.

Objective 3: Basing our actions on ethical principles

In 2016, Alzheimer Europe will

  • continue to develop its European Dementia Ethics Network and identify the changing definition of Alzheimer’s disease and its ethical implications as the priority of its work
  • set up a working group comprised of ethicists, clinicians, researchers and people with dementia and carers to meet twice in 2016 to discuss the ethical issues raised by the changing definition of Alzheimer’s disease
  • publish a report with the results of the literature review and recommendations on the changing definition of Alzheimer’s disease
  • invite ethicists and legal experts from 15 different countries to join the Alzheimer Europe Expert Advisory Panel to support, when necessary, the organisation in the development of ethical positions
  • work with ADI to promote the use of the UN Convention on the Rights of Persons with Disabilities by people with dementia
  • campaign for the ratification of The Hague Convention on the International Protection of Adults by European countries
  • develop closer ties with the Council of Europe in general and its Committee on Bioethics in particular

Objective 4: Building a stronger organisation

Supporting and involving national Alzheimer associations

In 2016, Alzheimer Europe will

  • update its member organisations on relevant EU policy developments and involve them in the development of policy positions through AE’s public affairs working group
  • organise its Alzheimer’s Association Academy in December 2016 and develop a programme based on the subjects and issues identified by its members
  • financially support the attendance of representatives from national organisations with an annual income of less than EUR 1 million at the Alzheimer’s Association Academy and AE’s public affairs meetings
  • ensure a variety of member organisations from different European regions are included in AE’s working groups.

Involving people with dementia and their carers

In 2016, Alzheimer Europe will

  • organise at least three meetings of the European Working Group of People with Dementia (EWGPWD) with one meeting coinciding with AE’s Annual Conference and one with a lunch debate in the European Parliament
  • identify new members to join the EWGPWD for the new mandate of the group starting in March 2016 and to ensure that at least ten national organisations are represented in the group
  • involve the EWGPWD in the organisation of the Annual Conference by including representatives in the Programme Committee to help with the selection of abstracts, by inviting them to deliver one keynote presentation and by asking them to organise a special symposium on the experience of living with dementia
  • involve the EWGPWD in various EU projects where AE is asked to provide the views of people with dementia

Establishing AE Conferences as unique networking opportunities

In 2016, Alzheimer Europe will

  • organise the 26th AE Conference in Copenhagen, Denmark from 31 October to 2 November under the motto “Excellence in dementia research and care” in collaboration with Alzheimerforeningen, the Danish Alzheimer’s association
  • involve its Expert Advisory Panel in the selection of breaking research topics and the selection of abstracts
  • aim to attract 600 participants from 30 countries to the conference
  • provide free registrations for up to three people with dementia from its national member organisations and provide a 25% discount to all participants registered by its members
  • improve the collaboration with the INTERDEM network for the organisation of the conference and the selection of topics to be addressed
  • issue a call for abstracts to be submitted under the following four key areas: research, policies and strategies, innovative care and dementia-friendly society
  • improve the abstract submission and evaluation as well as the registration process by opting for a new online system
  • evaluate participants’ satisfaction with the conference programme and practical organisation.

Developing strategic partnerships

In 2016, Alzheimer Europe will

  • Continue to play an active role as a member of the European Patients’ Forum
  • review its partnership agreement with Alzheimer’s Disease International (ADI), campaign for the possibility for AE to become a full ADI member and continue to coordinate with ADI to develop common approaches to the ongoing G7, G20, OECD and WHO initiatives in the field of dementia
  • formalise the relationship with INTERDEM through the adoption of a partnership agreement outlining areas of collaboration
  • seek to improve the collaboration with other European organisations such as the European Memory Clinics Association, European Alzheimer’s Disease Consortium, the European Academy of Neurology or the European Association of Geriatric Psychiatry
  • develop relations with various groups active in the European Parliament such as Eurocarers or the Interest Group on Mental Health, Well-being and Brain Disorders
  • explore the possibility of joining AGE or the European Disability Forum as a full member.

Providing a sound governance structure

In 2016, Alzheimer Europe will

  • organise quarterly meetings of the AE Board to monitor the association’s financial situation and the implementation of its work plan
  • involve the Chairperson of the European Working Group of People with Dementia as a full voting member at AE Board meetings
  • ensure that all policy positions adopted by AE get the support of its member organisations
  • organise its Alzheimer’s Association Academy separate from the Annual Conference to allow for more time for discussions and greater involvement of AE members in AE activities

Diversifying the organisation’s funding

In 2016, Alzheimer Europe will

  • carry out the different activities financed under the framework agreement (2015-2017) and the 2016 operating grant provided by the health programme of the European Union
  • continue its collaboration with Commission services for the development of a new three-year framework agreement (2018-2020)
  • identify funding opportunities by EU programmes such as the Innovative Medicines Initiative, the Joint Programme Neurodegenerative Diseases Research (JPND), Horizon2020 and the European Innovation Partnership on Active and Healthy Ageing
  • collaborate with the Alzheimer Europe Foundation and develop a long term fundraising plan for the Foundation.

Other activities and projects

EU Project participation

In 2016, Alzheimer Europe will

  • proactively engage with the Innovative Medicines Initiative, the Joint Programme Neurodegenerative Diseases Research (JPND), Horizon2020 and the European Innovation Partnership on Active and Healthy Ageing to identify additional opportunities to participate in EU projects,
  • continue its involvement in a number of EU funded projects by representing the views of people with dementia and their carers in the research consortium, by contributing to the ethical discussions and by supporting the communication and dissemination activities towards a non-scientific audience,
  • represent the wider dementia community in the following projects:
    • NILVAD (a clinical trial of nilvadipine)
    • EMIF (European Medical Information Framework)
    • AETIONOMY (development of an aetiology-based taxonomy of dementias)
    • PACE (effectiveness of palliative care for elderly people in long term care facilities in Europe)
    • AFE-INNOVNET (Innovation for age-friendly environments in the European Union)
    • PredictND (objective and systematic ICT-based approach for the diagnosis of neurodegenerative diseases)
    • EPAD (European Prevention of Alzheimer’s Dementia)
    • SMART4MD (Support, Monitoring And Reminder Technology for Mild Dementia)

Corporate Affairs

In 2016, Alzheimer Europe will

  • develop a number of activities funded thanks to the support of its corporate sponsors and partners,
  • develop a new long-term funding concept to coincide with the organisation’s new strategic plan (2016-2020),
  • organise three company round tables bringing together the AE Board, representatives of corporate sponsors and AE member organisations to discuss the progress of the organisation’s different corporate projects,
  • publish two editions of the Dementia in Europe magazine,
  • continue with its guideline watch by translating additional guidelines into English, including them in the online database and making the online database available to its member organisations and corporate sponsors,
  • make available on its website dementia-friendly information on phase II and phase III clinical trials conducted in Europe,
  • publish the findings of the European Dementia Monitor and present them at a lunch debate in the European Parliament
  • organise a symposium at the European Health Forum Gastein dedicated to EU action on dementia
  • conduct a carers’ survey on experiences of diagnosis and treatment in five European countries thanks to an educational grant by Roche.

2016 Budget

Income

01. Membership fees

63,000

02. Donations

 

03. EU-Subsidies

572,840

04. Corporate sponsorship

420,000

05. Other sponsorship/subsidies

87,000

06. Pub. Sales and royalties

100

07. AE Conference

133,800

09. Bank interest

500

10. Other revenue

 

11. Contributions in kind

55,700

Total Income

1,332,940

 

 

Expenses

01. Staff costs

651,790

01. External experts

171,920

02. Travel and Accommodation

302,405

03. Stationery and supplies

3,700

04. Communication costs

30,300

05. Publicity/Info. Material

79,500

06. Rent and office costs

43,570

07. Equipment and leasing

16,100

08. Membership fees

1,100

09. Bank charges

3,000

10. Other costs

20,355

11. Amortisation

9,200

Total Expenses

1,332,940

 

 
 

Last Updated: Wednesday 20 January 2016

 

 
 

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